News

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.

We bid you a warm welcome to the summer edition of Leaker Life. This newsletter focuses very much on the leaker community, with the spotlight cast on clinician, trustee and leaker alike. We also turn…

John shares his CSF Leak story with us. You can read about other patient stories on our patient experiences…

Scotland’s largest motorcycle fundraiser to support the CSF Leak Association took place between 26th-28th May and included a full day tour of the Isle of Skye. Starting at the historic ground of…

Welcome to the Spring 2018 edition of Leaker Life. In this edition we welcome our new Trustee, Tamsin Trevarthen, who we are really excited to be working with.We take a look back over Leak Week 2018…

Our first UK based awareness week ran from the 26^th February – 4th March 2018, and what a week it was!

Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…

Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF Leak Awareness. Thank also to everyone one braved the plummeting…