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Posted on 01 September 2018Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…
A CSF Leaker's Survival Guide
Posted on 31 August 2018Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.
2018 CSF Leak Association AGM
Posted on 16 August 2018This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.
A Message from the Trustees
Posted on 31 May 2018We bid you a warm welcome to the summer edition of Leaker Life. This newsletter focuses very much on the leaker community, with the spotlight cast on clinician, trustee and leaker alike. We also turn…
Leaker Profile - John Brennan
Posted on 30 May 2018John shares his CSF Leak story with us. You can read about other patient stories on our patient experiences…
Kilt Ride 2018
Posted on 28 May 2018Scotland’s largest motorcycle fundraiser to support the CSF Leak Association took place between 26th-28th May and included a full day tour of the Isle of Skye. Starting at the historic ground of…
A Message from the Trustees
Posted on 16 March 2018Welcome to the Spring 2018 edition of Leaker Life. In this edition we welcome our new Trustee, Tamsin Trevarthen, who we are really excited to be working with.We take a look back over Leak Week 2018…
CSF Leak Week UK 2018
Posted on 16 March 2018Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!
Meet the Medical Advisory Committee Members - Dr James Walken
Posted on 08 March 2018Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…
Rare Disease Day 2018, Scottish Parliamentary Reception
Posted on 01 March 2018By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…