All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

A CSF Leaker's Survival Guide

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.


2018 CSF Leak Association AGM

Association News

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.

A Message from the Trustees

We bid you a warm welcome to the summer edition of Leaker Life. This newsletter focuses very much on the leaker community, with the spotlight cast on clinician, trustee and leaker alike. We also turn…

Leaker Profile - John Brennan

John shares his CSF Leak story with us. You can read about other patient stories on our patient experiences…

A man from behind wearing a kilt and a shirt that says "Kilt Ride".

Kilt Ride 2018

Fundraising Events
Awareness Events

Scotland’s largest motorcycle fundraiser to support the CSF Leak Association took place between 26th-28th May and included a full day tour of the Isle of Skye. Starting at the historic ground of…

A Message from the Trustees

Welcome to the Spring 2018 edition of Leaker Life. In this edition we welcome our new Trustee, Tamsin Trevarthen, who we are really excited to be working with.We take a look back over Leak Week 2018…

Promotional material for the 2018 Leak Week UK.

CSF Leak Week UK 2018

Medical News
Awareness Events

Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!

Meet the Medical Advisory Committee Members - Dr James Walken

Medical News
Association News

Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…

Rare Disease Day 2018, Scottish Parliamentary Reception

Medical News
Awareness Events

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

Leaker Profile - Robert Edwards

Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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