News

Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…

Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…

Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…

The Australian Doctor Magazine in March 2019

CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.

Duncan James, of UK pop band Blue and now popular TV soap Hollyoaks, talks about his recent struggles with a cerebrospinal fluid leak following surgery. He reveals how this terrifying illness almost…

When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating…

A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak. Aundrea Aragon, 35, made several trips to her doctor over…

As I write this week’s blog, I am in my daughter Briana’s hospital room for the fourth day due to a CSF Leak (cerebral spinal fluid). My heart is filled with sadness, and the tears that roll down my…