Association News
News Categories
All news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life NewsletterFree Monthly CSF Leak Webinars Launch with UK Medical Experts
Posted on 29 October 2024Don’t miss out—mark your calendars and stay tuned for more details including how to register!
Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)
Posted on 07 June 2022UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…
Members News
Posted on 08 February 2022With the launch of the new website, we are now able to offer more member's benefits. One of these will include giving members access to exclusive news and events. On the public facing webpages,…
New Website Launch
Posted on 02 February 2022Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…
Brain & Spine Foundation Helpline
Posted on 01 December 2021We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience trained nurses for anyone who is…
Photo Competition
Posted on 01 December 2021We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…
Membership Volunteer Needed
Posted on 01 December 2021Are you able to use Gmail and have 1.5 hours per week to spare? If the answer is yes, we need your help. The CSF Leak Association is looking for a new volunteer to monitor the mailbox dealing with…
Redevelopment of Our Website
Posted on 01 December 2021In 2020 our website passed the landmark of one million views since it was first launched. It has served us well, but is built around a dated free template and before mobile browsing became the norm.…
Join Our Board
Posted on 01 December 2021We have ambitious plans for the future and we need more trustees with the time and skill to help us support our members and achieve our aims. You do not need to have been a trustee before as our…
Patient Survey Thank You
Posted on 01 March 2021A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…