News

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience­ trained nurses for anyone who is…

We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…

Are you able to use Gmail and have 1.5 hours per week to spare? If the answer is yes, we need your help. The CSF Leak Association is looking for a new volunteer to monitor the mailbox dealing with…

In 2020 our website passed the landmark of one million views since it was first launched. It has served us well, but is built around a dated free template and before mobile browsing became the norm.…

We have ambitious plans for the future and we need more trustees with the time and skill to help us support our members and achieve our aims. You do not need to have been a trustee before as our…

A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…

Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…