News

Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

Leak Week goes International !

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…

Welcome to the Winter 2021 edition of Leaker Life. The Covid pandemic continues, but life is slowly returning to a "new normal". From my personal experience, the NHS is starting to address ever…

Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension

We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience­ trained nurses for anyone who is…