News

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

Leak Week goes International !

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…

Welcome to the Winter 2021 edition of Leaker Life. The Covid pandemic continues, but life is slowly returning to a "new normal". From my personal experience, the NHS is starting to address ever…

Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension

We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience­ trained nurses for anyone who is…

We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…