All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Brain & Spine Foundation Helpline

Association News

We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience­ trained nurses for anyone who is…

Photo Competition

Association News

We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…

Membership Volunteer Needed

Association News

Are you able to use Gmail and have 1.5 hours per week to spare? If the answer is yes, we need your help. The CSF Leak Association is looking for a new volunteer to monitor the mailbox dealing with…

Redevelopment of Our Website

Association News

In 2020 our website passed the landmark of one million views since it was first launched. It has served us well, but is built around a dated free template and before mobile browsing became the norm.…

Journeying with a CSF Leaker

Martin Boyd describes the journey he took as a carer for his wife Viv

Join Our Board

Association News

We have ambitious plans for the future and we need more trustees with the time and skill to help us support our members and achieve our aims. You do not need to have been a trustee before as our…

A Message from the Editor

Welcome to the Autumn 2020 edition of Leaker Life. 2020 has been a truly horrid year. Covid-19 has had an enormous impact on life in the UK and abroad. While the NHS has done a great job responding…

Patient Survey Thank You

Association News

A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…

Redevelopment of our Website

Association News

Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…

Duke University Medical Center, North Carolina virtual meeting

Medical News

Headache: The Highs & Lows of CSF Pressure Problems

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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