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Posted on 17 October 2022Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…
Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)
Posted on 07 June 2022UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…
Leak Week 2022
Posted on 15 May 2022Leak Week goes International !
Members News
Posted on 08 February 2022With the launch of the new website, we are now able to offer more member's benefits. One of these will include giving members access to exclusive news and events. On the public facing webpages,…
Publication of the results of our patient survey
Posted on 03 February 2022We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…
New Website Launch
Posted on 02 February 2022Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…
Coping with a CSF Leak
Posted on 02 February 2022Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…
A Message from the Editor
Posted on 13 December 2021Welcome to the Winter 2021 edition of Leaker Life. The Covid pandemic continues, but life is slowly returning to a "new normal". From my personal experience, the NHS is starting to address ever…
Medical Guidelines Development
Posted on 12 December 2021Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension
Brain & Spine Foundation Helpline
Posted on 01 December 2021We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience trained nurses for anyone who is…