News

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…

Welcome to the Winter 2021 edition of Leaker Life. The Covid pandemic continues, but life is slowly returning to a "new normal". From my personal experience, the NHS is starting to address ever…

Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension

We've recently received a communication from a sister charity, the Brain and Spine Foundation. They run a confidential national Helpline staffed by neuroscience­ trained nurses for anyone who is…

We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…

Are you able to use Gmail and have 1.5 hours per week to spare? If the answer is yes, we need your help. The CSF Leak Association is looking for a new volunteer to monitor the mailbox dealing with…

In 2020 our website passed the landmark of one million views since it was first launched. It has served us well, but is built around a dated free template and before mobile browsing became the norm.…

Martin Boyd describes the journey he took as a carer for his wife Viv

We have ambitious plans for the future and we need more trustees with the time and skill to help us support our members and achieve our aims. You do not need to have been a trustee before as our…