Raising Awareness and Supporting Recovery for Cerebrospinal Fluid (CSF) Leaks.

Name: CSF Leak Association
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We’re a registered charity working to raise awareness of cerebrospinal fluid (CSF) leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.

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What is a CSF Leak?

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Smiling woman lying down and giving a thumbs up, overcoming challenges with a positive attitude.

Medical MRI scan revealing a thoracic spinal CSF leak.

Announcements

Learn more about upcoming events and read articles to find out more about the CSF Leak Association by clicking on the links below.

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Mar 08

Upcoming Event

Cerian and Calum Run for CSF Leakers

Calum Baldwin not yet at school running 5K to support people with CSF leaks

An Introduction to Cerebrospinal Fluid (CSF) Leaks

Understanding the condition

Raising awareness of the condition and educating medical professionals and sufferers is one of our major goals. Watch the video and follow the links below to find out more details about the CSF Leak condition.

More Information

Causes Symptoms

Patient Experiences

Cerebrospinal fluid leaks aren't just something mentioned briefly in medical textbooks, they affect people and their lives. The impact on individuals and their families can be huge and, when left unresolved, a CSF leak can be life-changing.

Read all stories

The fight for Pam

Wednesday 21st June 2023 was one of the hottest days of the year. We sat in a daze, the sun bright in our tear worn eyes outside the hospital wondering, again, what was in store for us. Read more

Keeley Burney

I’d been unwell for 10 years with flares of ill health; experiencing awful headaches... Seven years ago, I was diagnosed with fibromyalgia. Two years ago, I became unwell but knew there was something wrong... Read more

Bernadette Hard

I encountered a stressful event that threatened key aspects of my life, I felt like my head would explode but I never in a million years believed that it literally would do exactly that. Read more

Become an Association Member

By becoming a member, you'll be:

Advancing Research: Supporting vital research into improved diagnosis and treatment options
Empowering Advocacy: Strengthening our voice as we campaign for better healthcare services and awareness
Driving Change: Helping transform medical understanding and treatment of CSF leaks
Supporting Education: Enabling us to develop resources that raise awareness among healthcare professionals

As a member, you'll also receive:

Access to resources in our online member’s area
Opportunities to participate in research initiatives
Invitation to contribute to our advocacy work
Voice in shaping the future direction of our charity with the right to attend and vote at members’ meetings

Become a Member

Resources & Factsheets

We have prepared information and resources which we hope will help to raise awareness of CSF leaks and the associated medical condition Intracranial Hypotension

Information For

Diagnosis & Management of SIH

Information For

Medical Professionals

View All (11)

Resource

CSF Leak FAQs: Essential Information About Cerebrospinal Fluid Leaks

Resource

Diagnosis & Management of SIH

Resource

European Association of Neurosurgical Societies

Information For

Medical Guidelines

View All (3)

Resource

Spontaneous Cerebrospinal Fluid Rhinorrhea

Resource

Postdural Puncture Headache

Resource

Diagnosis & Management of SIH

How you can help

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out more about how by following the links and deciding which method fits you best. We appreciate any help you are able to give.

Learn About the Association