We’re a registered charity working to raise awareness of cerebrospinal fluid (CSF) leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.
Members
We’re a registered charity working to raise awareness of cerebrospinal fluid (CSF) leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.
Learn more about upcoming events and read articles to find out more about the CSF Leak Association by clicking on the links below.
“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those…
An Introduction to Cerebrospinal Fluid (CSF) Leaks
Cerebrospinal fluid leaks aren’t just something discussed in a medical textbook, they affect people and their lives. The impact can be huge and, when left unresolved, a CSF leak can be life-changing.
John Jackson
Hi, my name’s John, and for the past five years I have been a leaker…. Read more
Sandie Moore
The Volunteers are a really fun and dedicated band of people from all different walks of life - we are so lucky to have them gunning for us. Read more
Gabrielle Brandon
A previous neurologist had dismissed my problem as an ‘EDS thing’... Read more
As an organisation, our aim is to provide support to all sufferers of cerebrospinal fluid (CSF) leaks and, in addition, their family, friends and medical advisers. Member benefits include:
We have prepared information and resources which we hope will help to raise awareness of CSF leaks and the associated medical condition Intracranial Hypotension
You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out more about how by following the links and deciding which method fits you best. We appreciate any help you are able to give.
If volunteering is something you think you are able to commit to, then please follow the link to find out more about how you can help.
Any donations are appreciated and will help to raise awareness. Please follow the link to find out how you can make a donation.
There are different categories of membership so please follow the link to find out which category fits you best.
Help us raise awareness of the condition by keeping up to date about what can be done by signing up for our newsletter below.
If you wish to contribute by fundraising please follow the link below for tips on how you can make a difference.
Support our mission by getting something for yourself or loved ones from our online shop.
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