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Posted on 31 August 2020Spotlight on a Trustee
CSF Leak Medical Accommodations Card
Posted on 04 June 2020The Medical Accommodations Card helps others to understand your condition.
Spotlight on a Volunteer - Claire Secker
Posted on 01 April 2020Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak Sufferers
Posted on 20 March 2020This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
Rare Disease Day 2020
Posted on 04 February 2020We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…
Intracranial Hypotension Symposium 2020
Posted on 16 January 2020Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.
2020 London Marathon
Posted on 27 November 2019When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.
A Message from the Trustees
Posted on 17 October 2019Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…
A Message from the Outgoing Chairman
Posted on 17 October 2019The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…
A further message from Dr. Susan Iacovou
Posted on 17 October 2019At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…