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The Medical Accommodations Card helps others to understand your condition.

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

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Last updated: 24 March 2020.

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…

The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…

At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…

The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.