All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Rare Disease Day 2020

Awareness Events

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Intracranial Hypotension Symposium 2020

Medical News
Awareness Events

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

2020 London Marathon

Fundraising Events
Association News

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

A Message from the Trustees

Association News

Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…

A Message from the Outgoing Chairman

Association News

The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…

A further message from Dr. Susan Iacovou

Association News

At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…

Headache Academy 2019

Awareness Events

The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.

First Ever UK Doctors CSF Leak Study Day

Medical News

20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…

Calling All Junior Doctors

Association News

The CSF Leak Association is delighted to be able to offer a bursary to support a UK-based junior doctor to travel to, and attend, the 3rd annual Intracranial Hypotension Symposium on 8th February…

An illustration of coffee, laptop, and headphones that says "Real Life" "Leaker Life".

Desert Island Discs

by Sandie Moore

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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