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2020 London MarathonPosted on 27 November 2019
When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.
A Message from the TrusteesPosted on 17 October 2019
Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…
A Message from the Outgoing ChairmanPosted on 17 October 2019
The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…
A further message from Dr. Susan IacovouPosted on 17 October 2019
At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…
Headache Academy 2019Posted on 15 October 2019
The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.
First Ever UK Doctors CSF Leak Study DayPosted on 23 September 2019
20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…
Calling All Junior DoctorsPosted on 19 September 2019
The CSF Leak Association is delighted to be able to offer a bursary to support a UK-based junior doctor to travel to, and attend, the 3rd annual Intracranial Hypotension Symposium on 8th February…
Desert Island DiscsPosted on 01 September 2019
by Sandie Moore
Spotlight on a Volunteer - Russell SeckerPosted on 01 September 2019
We are delighted to welcome Russell Secker on board as a newly recruited, and much appreciated charity volunteer. His interest in supporting the association originates from his own leaker experience.
Spotlight on TrusteesPosted on 31 August 2019
The CSF Leak Association Board would also like to acknowledge and thank Clare Sargeant for all the work that she did for the Charity as a Trustee/Secretary during 2018-19 and before that as a…