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The Medical Accommodations Card helps others to understand your condition.

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

This page will be kept under review and amended if/when government or expert guidance is updated.

Last updated: 24 March 2020.

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…

The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.

20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…

We are delighted to welcome Russell Secker on board as a newly recruited, and much appreciated charity volunteer. His interest in supporting the association originates from his own leaker experience.