News

Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…

Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…

“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…

Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

Leak Week goes International !

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

Jodi Ettenberg shares this powerful insight into living, and making some sort of peace, with a CSF…