News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

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Exhibiting at Headache Academy 2026 at the Royal College of Physicians in London

Awareness Events

If you're attending, please stop by our stand and say hello. We'd love to meet you and discuss how we can work together to improve outcomes for people affected by CSF leaks.

Ten Years of the CSF Leak Association: From Personal Experience to National Change

Awareness Events

By David Baldwin, Founding Trustee and First Chairman 

CSF Leak Support Group

Association News

Stronger TogetherA fortnightly online group for people living with a CSF leak Tuesdays, 6:00pm–7:30pmStarting 22 September…

Clinician Facing SIH Guideline Infographics

Association News

We are pleased to announce the clinician facing infographic of our SIH guidelines. We encourage you to print and share to raise awareness.

Patient Facing SIH Guideline Infographics

Association News

We are pleased to announce the patient facing infographic of our SIH guidelines. We encourage you to print and share to raise awareness.

Invite your MP to learn more about neurological conditions

Medical News

We're supporting The Neurological Alliance at Parliament on 16 January to advocate for better care and support for people with CSF leaks and other neurological conditions.

We’re proud to #BackThe1in6

Medical News

UK Government launches first-ever forum to address gaps in treatment and care for people affected by neurological conditions, following #BackThe1in6 campaign.

Free Monthly CSF Leak Webinars Launch with UK Medical Experts

Association News

Don’t miss out—mark your calendars and stay tuned for more details including how to register!

Podcast episode CSF Leaks -Symptoms, diagnosis and treatment

New podcast episode is out now! In this compelling episode, headache specialist Dr Katy Munro speaks with Dr Deborah Kerr, a GP, and fellow headache specialist, and Dr Bernadette Hard, to explore…

Podcast episode on SIH Guideline

This episode of the Practical Neurology Podcast is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache. Key members of the special interest group who wrote…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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