News

Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter…

Don’t miss out—mark your calendars and stay tuned for more details including how to register!

New podcast episode is out now! In this compelling episode, headache specialist Dr Katy Munro speaks with Dr Deborah Kerr, a GP and fellow headache specialist, and Dr Bernadette Hard, to explore…

This episode of the Practical Neurology Podcast is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache. Key members of the special interest group who wrote…

STRONGER TOGETHER in 2024 A new 12-week Facilitated Group Programme for CSF Leak patients in Scotland *Please note that due to National Lottery Awards for All Scotland funding stipulations this…

Places are limited. Please register your interest as soon as possible

Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…

Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…

“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…

Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…