News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

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We’re proud to #BackThe1in6

Medical News

UK Government launches first-ever forum to address gaps in treatment and care for people affected by neurological conditions, following #BackThe1in6 campaign.

Have Your Say: Quality Statements for Rare Disease Survey

Medical News

Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter…

Free Monthly CSF Leak Webinars Launch with UK Medical Experts

Association News

Don’t miss out—mark your calendars and stay tuned for more details including how to register!

Podcast episode CSF Leaks -Symptoms, diagnosis and treatment

New podcast episode is out now! In this compelling episode, headache specialist Dr Katy Munro speaks with Dr Deborah Kerr, a GP and fellow headache specialist, and Dr Bernadette Hard, to explore…

Podcast episode on SIH Guideline

This episode of the Practical Neurology Podcast is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache. Key members of the special interest group who wrote…

Mental Health Support Group

STRONGER TOGETHER in 2024 A new 12-week Facilitated Group Programme for CSF Leak patients in Scotland *Please note that due to National Lottery Awards for All Scotland funding stipulations this…

Free Counselling Service for Individuals and Couples (18+) living in Scotland

Places are limited. Please register your interest as soon as possible

Co Down mum forced to permanently lie on her back after C-section causes brain leak

Leaks in the News

Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…

Vanessa Hilton and her experience of a leak and her successful fundraising

Leaks in the News

Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…

An icon that says Giving Tuesday.

Giving is Good!

“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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