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Posted on 18 August 2023Living with a CSF Leak: Looking after your mental wellbeing
Co Down mum forced to permanently lie on her back after C-section causes brain leak
Posted on 14 March 2023Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…
Vanessa Hilton and her experience of a leak and her successful fundraising
Posted on 14 March 2023Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…
Giving is Good!
Posted on 28 November 2022“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…
Dan's Royal Parks Half Marathon
Posted on 17 October 2022Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…
Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)
Posted on 07 June 2022UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…
Leak Week 2022
Posted on 15 May 2022Leak Week goes International !
Members News
Posted on 08 February 2022With the launch of the new website, we are now able to offer more member's benefits. One of these will include giving members access to exclusive news and events. On the public facing webpages,…
Publication of the results of our patient survey
Posted on 03 February 2022We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…
New Website Launch
Posted on 02 February 2022Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…
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