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We’re proud to #BackThe1in6
Posted on 30 November 2024UK Government launches first-ever forum to address gaps in treatment and care for people affected by neurological conditions, following #BackThe1in6 campaign.
Have Your Say: Quality Statements for Rare Disease Survey
Posted on 09 November 2024Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter…
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Posted on 30 November 2024UK Government launches first-ever forum to address gaps in treatment and care for people affected by neurological conditions, following #BackThe1in6 campaign.
Have Your Say: Quality Statements for Rare Disease Survey
Posted on 09 November 2024Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter…
Free Monthly CSF Leak Webinars Launch with UK Medical Experts
Posted on 29 October 2024Don’t miss out—mark your calendars and stay tuned for more details including how to register!
Podcast episode CSF Leaks -Symptoms, diagnosis and treatment
Posted on 20 September 2024New podcast episode is out now! In this compelling episode, headache specialist Dr Katy Munro speaks with Dr Deborah Kerr, a GP and fellow headache specialist, and Dr Bernadette Hard, to explore…
Podcast episode on SIH Guideline
Posted on 03 May 2024This episode of the Practical Neurology Podcast is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache. Key members of the special interest group who wrote…
Mental Health Support Group
Posted on 18 December 2023STRONGER TOGETHER in 2024 A new 12-week Facilitated Group Programme for CSF Leak patients in Scotland *Please note that due to National Lottery Awards for All Scotland funding stipulations this…
Free Counselling Service for Individuals and Couples (18+) living in Scotland
Posted on 05 October 2023Places are limited. Please register your interest as soon as possible
Co Down mum forced to permanently lie on her back after C-section causes brain leak
Posted on 14 March 2023Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…
Vanessa Hilton and her experience of a leak and her successful fundraising
Posted on 14 March 2023Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…
Giving is Good!
Posted on 28 November 2022“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…