All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Workshop for patients living in Scotland

Living with a CSF Leak: Looking after your mental wellbeing

Co Down mum forced to permanently lie on her back after C-section causes brain leak

Leaks in the News

Read about Victoria Conn's experience who says her local hospital has refused to give her a simple operation that will ease her pain on…

Vanessa Hilton and her experience of a leak and her successful fundraising

Leaks in the News

Read about Vanessa Hilton's experience her CSF Leak and fundraising in The Guardian and The Northern…

An icon that says Giving Tuesday.

Giving is Good!

“We cannot do great things on this earth, only small things with great love.” Mother Theresa The quote above is mostly true. However those small acts can really add up and great things can be…

A group of runners and supporters smiling holding a large flag that says CSF Leak Association.

Dan's Royal Parks Half Marathon

Thank you Dan! We'd like to thank Dan Sargeant for doing an amazing job raising funds for and awareness of CSF leaks. Dan took part in the Royal Parks Half Marathon on October 9th with a target of…

Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)

Medical News
Association News

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

Leak Week 2022

Leak Week goes International !

Leak Week dates

Members Only The e-newsletter from the CSF Leak Association

Members News

Association News

With the launch of the new website, we are now able to offer more member's benefits. One of these will include giving members access to exclusive news and events. On the public facing webpages,…


Publication of the results of our patient survey

Medical News

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

New Website Launch

Association News

Welcome to our fantastic new website! A massive thank you to the Hospital Saturday Fund for their £9000 grant that made this possible and to Quisk and all the volunteers who have spent endless hours…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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