News

A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…

Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…

Headache: The Highs & Lows of CSF Pressure Problems

Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline

Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…

With Covid-19 presenting a huge challenge for people across the globe and understandably dominating much of our health services’ resources, we are acutely aware of the significant, and in many cases…

Welcome to the Spring 2020 edition of Leaker Life. As the new Editor of our e-newsletter, let me briefly introduce myself. I’m a former Leaker, who was very unwell, and fortunate to have been…

Welcome to the Spring 2021 edition of Leaker Life. 2020 was a truly horrid year, but at least our UK Covid-19 numbers are now trending in the right direction. The NHS has continued to respond…

The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…

Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…