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Posted on 01 March 2021A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…
Redevelopment of our Website
Posted on 01 March 2021Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…
Duke University Medical Center, North Carolina virtual meeting
Posted on 01 March 2021Headache: The Highs & Lows of CSF Pressure Problems
Guideline Development & Patient Survey
Posted on 01 March 2021Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline
Spotlight on Trustees
Posted on 01 March 2021Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…

An Update from the Board of Trustees
Posted on 28 February 2021With Covid-19 presenting a huge challenge for people across the globe and understandably dominating much of our health services’ resources, we are acutely aware of the significant, and in many cases…
Message from the Editor
Posted on 28 February 2021Welcome to the Spring 2020 edition of Leaker Life. As the new Editor of our e-newsletter, let me briefly introduce myself. I’m a former Leaker, who was very unwell, and fortunate to have been…
A Message from the Editor
Posted on 28 February 2021Welcome to the Spring 2021 edition of Leaker Life. 2020 was a truly horrid year, but at least our UK Covid-19 numbers are now trending in the right direction. The NHS has continued to respond…
Patient Impact Survey Report 2020
Posted on 31 December 2020The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…
Changes to the Board of Trustees
Posted on 19 November 2020Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…