News

We'd love to feature the photo of a current or recovered Leaker in a "lying down pose" on our new website homepage. As most of us know, orthostatic headaches are a common symptom of CSF leaking, and…

Are you able to use Gmail and have 1.5 hours per week to spare? If the answer is yes, we need your help. The CSF Leak Association is looking for a new volunteer to monitor the mailbox dealing with…

In 2020 our website passed the landmark of one million views since it was first launched. It has served us well, but is built around a dated free template and before mobile browsing became the norm.…

Martin Boyd describes the journey he took as a carer for his wife Viv

We have ambitious plans for the future and we need more trustees with the time and skill to help us support our members and achieve our aims. You do not need to have been a trustee before as our…

Welcome to the Autumn 2020 edition of Leaker Life. 2020 has been a truly horrid year. Covid-19 has had an enormous impact on life in the UK and abroad. While the NHS has done a great job responding…

A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…

Headache: The Highs & Lows of CSF Pressure Problems

Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline

Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…