All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Patient Survey Thank You

Association News

A MASSIVE thank you to everyone who participated in our online patient survey. Patient involvement is an essential part of medical guideline development and your input was crucial to the work being…

Redevelopment of our Website

Association News

Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…

Duke University Medical Center, North Carolina virtual meeting

Medical News

Headache: The Highs & Lows of CSF Pressure Problems

Guideline Development & Patient Survey

Medical News

Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline

Spotlight on Trustees

Association News

Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…


An Update from the Board of Trustees

With Covid-19 presenting a huge challenge for people across the globe and understandably dominating much of our health services’ resources, we are acutely aware of the significant, and in many cases…

Message from the Editor

Welcome to the Spring 2020 edition of Leaker Life. As the new Editor of our e-newsletter, let me briefly introduce myself. I’m a former Leaker, who was very unwell, and fortunate to have been…

A Message from the Editor

Welcome to the Spring 2021 edition of Leaker Life. 2020 was a truly horrid year, but at least our UK Covid-19 numbers are now trending in the right direction. The NHS has continued to respond…

Patient Impact Survey Report 2020

Association News

The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…

Changes to the Board of Trustees

Association News

Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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