News

Medical News

Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)

Medical News
Association News

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

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Publication of the results of our patient survey

Medical News

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

Medical Guidelines Development

Medical News

Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension

Duke University Medical Center, North Carolina virtual meeting

Medical News

Headache: The Highs & Lows of CSF Pressure Problems

Guideline Development & Patient Survey

Medical News

Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline

Covid-19 Impact Survey

Medical News

A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…

SIH Symposium 2020

Medical News

This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.

Intracranial Hypotension Symposium 2020

Medical News
Awareness Events

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

First Ever UK Doctors CSF Leak Study Day

Medical News

20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…

Leaker Profile - Claire Comley

Medical News

A huge thank you from us all at the CSF Leak Association to Claire Comley, who shares her cranial leak story in this edition of Leaker Life. You can also read about other patient experiences on our…


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