News

Rare Diseases risk being left behind when it comes to policymakers making decisions about how to best set up and manage services for those affected by them. We would like your support to counter…

UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…

We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…

Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension

Headache: The Highs & Lows of CSF Pressure Problems

Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline

A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…

This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…