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Posted on 07 June 2022UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all…
Publication of the results of our patient survey
Posted on 03 February 2022We're pleased to announce the publication of the results of our patient survey in BMJ Open, a peer reviewed open access medical journal. The paper entitled ‘Patient experience of diagnosis and…
Medical Guidelines Development
Posted on 12 December 2021Special Interest Group: Guideline development for Spontaneous Intracranial Hypotension
Duke University Medical Center, North Carolina virtual meeting
Posted on 01 March 2021Headache: The Highs & Lows of CSF Pressure Problems
Guideline Development & Patient Survey
Posted on 01 March 2021Trustees Tamsin Trevarthen and Clare Joy have an update to share about our work towards a guideline
Covid-19 Impact Survey
Posted on 01 September 2020A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…
SIH Symposium 2020
Posted on 01 September 2020This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.
Intracranial Hypotension Symposium 2020
Posted on 16 January 2020Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.
First Ever UK Doctors CSF Leak Study Day
Posted on 23 September 201920th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…
Leaker Profile - Claire Comley
Posted on 07 May 2019A huge thank you from us all at the CSF Leak Association to Claire Comley, who shares her cranial leak story in this edition of Leaker Life. You can also read about other patient experiences on our…