News

We are delighted to announce that we have been awarded a grant by Hospital Saturday Fund to help us develop a new website and resource hub. The new site, which will be developed with industry…

As a nation, we’re an extremely charitable bunch. In 2017, the British public gave nearly £10 billion to their favourite causes – and a significant chunk of that was donated by people as part of…

I’m Jenny Pople and I’m a Research Scientist at Unilever R&D near Bedford, UK. I had my first CSF leak in 2012 and I’m currently managing my third leak which hasn’t responded well to blood…

Valerie is one of our hard working and dedicated volunteers. She has kindly agreed to share the experiences that drew her to the Association, and a little about what her role involves. Thank you, Valerie!

The Australian Doctor Magazine in March 2019

17 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.