News

20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…

The CSF Leak Association is delighted to be able to offer a bursary to support a UK-based junior doctor to travel to, and attend, the 3rd annual Intracranial Hypotension Symposium on 8th February…

We are delighted to welcome Russell Secker on board as a newly recruited, and much appreciated charity volunteer. His interest in supporting the association originates from his own leaker experience.

The CSF Leak Association Board would also like to acknowledge and thank Clare Sargeant for all the work that she did for the Charity as a Trustee/Secretary during 2018-19 and before that as a…

We are delighted to announce that we have been awarded a grant by Hospital Saturday Fund to help us develop a new website and resource hub. The new site, which will be developed with industry…

Welcome to the long awaited Spring / Summer edition of Leaker Life. As always, lots of action has been taking place behind the scenes and the Association continues to make great strides forward. Read…

As a nation, we’re an extremely charitable bunch. In 2017, the British public gave nearly £10 billion to their favourite causes – and a significant chunk of that was donated by people as part of…

A huge thank you from us all at the CSF Leak Association to Claire Comley, who shares her cranial leak story in this edition of Leaker Life. You can also read about other patient experiences on our…

I’m Jenny Pople and I’m a Research Scientist at Unilever R&D near Bedford, UK. I had my first CSF leak in 2012 and I’m currently managing my third leak which hasn’t responded well to blood…

Valerie is one of our hard working and dedicated volunteers. She has kindly agreed to share the experiences that drew her to the Association, and a little about what her role involves. Thank you, Valerie!