It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you by Cambridge Rare Disease Network (CRDN). Free to attend, this 2-day festival will shine a light on some successes and innovative solutions that are striving to address this, and we will be there! RAREfest will raise awareness of rare conditions and bring together all stakeholders in the rare disease community alongside the general public from across Cambridgeshire and beyond. We are proud to be supporting RAREfest. For more information please visit http://camraredisease.org/rarefest/

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You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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