Personal stories from caregivers of CSF leakers

There are many ways you can help someone with a CSF leak. Below we have shared some personal stories of how people have helped individuals. Volunteering with us or fundraising is also an opportunity to help the wider leaker community which in turn will help improve the chances of your loved on getting the treatment they need.

Journeying with a CSF Leaker

As a neuro rehab physio, I felt quite knowledgeable about neurological conditions. However, in 2018 I was confronted with a condition I had never heard of before, Spontaneous Intracranial Hypotension (SIH). Learn more

The joys of babies and CSF leaks

We were quite nervous at the prospect of becoming parents as our lives were already very challenging with David's CSF leak. Learn more

A Wife's Story

I’ve been supporting my husband with this condition for nearly a year now. I wanted to share my experience in the hope it’s of some help or comfort to others who find themselves in this position. Learn more

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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