All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Annual General Meeting 2020

Association News

The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…

Covid-19 Impact Survey

Medical News

A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…

SIH Symposium 2020

Medical News

This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.

Spotlight on a volunteer banner

Virtual London Marathon

Fundraising Events

Claire Secker

Cerian Baldwin

Spotlight on a Trustee

CSF Leak Medical Accommodations Card

Association News

The Medical Accommodations Card helps others to understand your condition.

Spotlight on a volunteer banner

Spotlight on a Volunteer - Claire Secker

Association News

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

COVID-19 Information for CSF Leak Sufferers

Association News

This page will be kept under review and amended if/when government or expert guidance is updated.

Last updated: 24 March 2020.

Rare Disease Day 2020

Awareness Events

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Intracranial Hypotension Symposium 2020

Medical News
Awareness Events

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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