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Posted on 09 November 2020The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…
Covid-19 Impact Survey
Posted on 01 September 2020A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…
SIH Symposium 2020
Posted on 01 September 2020This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.

Virtual London Marathon
Posted on 01 September 2020Claire Secker
Cerian Baldwin
Posted on 31 August 2020Spotlight on a Trustee
CSF Leak Medical Accommodations Card
Posted on 04 June 2020The Medical Accommodations Card helps others to understand your condition.

Spotlight on a Volunteer - Claire Secker
Posted on 01 April 2020Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak Sufferers
Posted on 20 March 2020This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
Rare Disease Day 2020
Posted on 04 February 2020We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…
Intracranial Hypotension Symposium 2020
Posted on 16 January 2020Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.