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Cerian BaldwinPosted on 31 August 2020
Spotlight on a Trustee
CSF Leak Medical Accommodations CardPosted on 04 June 2020
The Medical Accommodations Card helps others to understand your condition.
Spotlight on a Volunteer - Claire SeckerPosted on 01 April 2020
Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak SufferersPosted on 20 March 2020
This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
Rare Disease Day 2020Posted on 04 February 2020
We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…
Intracranial Hypotension Symposium 2020Posted on 16 January 2020
Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.
2020 London MarathonPosted on 27 November 2019
When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.
A Message from the TrusteesPosted on 17 October 2019
Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…
A Message from the Outgoing ChairmanPosted on 17 October 2019
The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…
A further message from Dr. Susan IacovouPosted on 17 October 2019
At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…