News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


Cerian Baldwin

Spotlight on a Trustee

CSF Leak Medical Accommodations Card

Association News

The Medical Accommodations Card helps others to understand your condition.

Spotlight on a volunteer banner

Spotlight on a Volunteer - Claire Secker

Association News

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

COVID-19 Information for CSF Leak Sufferers

Association News

This page will be kept under review and amended if/when government or expert guidance is updated.

Last updated: 24 March 2020.

Rare Disease Day 2020

Awareness Events

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Intracranial Hypotension Symposium 2020

Medical News
Awareness Events

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

2020 London Marathon

Fundraising Events
Association News

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

A Message from the Trustees

Association News

Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…

A Message from the Outgoing Chairman

Association News

The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…

A further message from Dr. Susan Iacovou

Association News

At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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