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Annual General Meeting 2020Posted on 09 November 2020
The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…
Covid-19 Impact SurveyPosted on 01 September 2020
A huge thank you to everyone who completed our recent Covid-19 impact survey. Every single response is valuable and will contribute to the call for much needed improvements to the quality of care for…
SIH Symposium 2020Posted on 01 September 2020
This is the second in the series of write-ups from this Conference. This edition is from Dr. Amar A Chotai, an Interventional Neuroradiology Fellow At the Royal Victoria Infirmary, Newcastle-upon-Tyne.
Virtual London MarathonPosted on 01 September 2020
Cerian BaldwinPosted on 31 August 2020
Spotlight on a Trustee
CSF Leak Medical Accommodations CardPosted on 04 June 2020
The Medical Accommodations Card helps others to understand your condition.
Spotlight on a Volunteer - Claire SeckerPosted on 01 April 2020
Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak SufferersPosted on 20 March 2020
This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
Rare Disease Day 2020Posted on 04 February 2020
We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…
Intracranial Hypotension Symposium 2020Posted on 16 January 2020
Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.