Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to spread awareness and knowledge about CSF Leaks, helping those suffering now and those who will follow in years to come. As our work expands and develops, so too does our need for more volunteers.

We are delighted to welcome new members to our team; Charlene who will be helping with social media and fundraising and Farouk who will manage our volunteer base. Two social sciences students from Brighton university have recently joined us as part of their community engagement course. Steven is busy researching the prevalence of CSF leaks for us and Laurie is helping with a social media campaign.

We are particularly pleased to announce that Martin Boyd has answered our call for a new Trustee, joining the Board earlier this year. As things currently stand, the composition of the Board of Trustees is as follows:

Clare Joy (Chair)

Tamsin Trevarthen (Secretary)

Cerian Baldwin (Treasurer)

Deborah Ogg

Clare Sargeant

Martin Boyd

We are a small team and there is still much work to be done. The CSF Leak Association can only function and achieve all that it does due to the work of its dedicated group of Trustees and volunteers. We are always on the lookout for new people to join us and help with specific tasks or projects. If you think that volunteering with the CSF Leak Association may be for you, please drop us a line at

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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