News

This year we have teamed up with DontSendMeACard.com so that you can send customised e-cards and donate the equivalent costs of buying and sending the cards to charity. In addition, you can post your…

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13^th-14^th October 2018 at the Royal College of Physicians in London.

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…

Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.