News CategoriesAll news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life Newsletter
Christmas Cards 2018Posted on 01 December 2018
This year we have teamed up with DontSendMeACard.com so that you can send customised e-cards and donate the equivalent costs of buying and sending the cards to charity. In addition, you can post your…
Meet the Medical Advisory Committee Members - Dr. Anthony OrdmanPosted on 16 November 2018
In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…
A Message from the EditorPosted on 31 October 2018
Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…
First Ever Headache AcademyPosted on 16 October 2018
The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.
RAREfestPosted on 16 October 2018
It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…
Second Annual Cedars-Sinai Intracranial Hypotension SymposiumPosted on 01 October 2018
The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.
Tractor Rally 2018Posted on 22 September 2018
For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…
Leaker Profile - Denise MoorePosted on 01 September 2018
Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…
A CSF Leaker's Survival GuidePosted on 31 August 2018
Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.
2018 CSF Leak Association AGMPosted on 16 August 2018
This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.