All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Leaker Profile - Pete Marnick

Our Trustee tells his story of living with a CSF leak. You can read other stories on our patient experiences…

An image of snowflakes and "Christmas 2018".

Christmas Cards 2018

Fundraising Events

This year we have teamed up with so that you can send customised e-cards and donate the equivalent costs of buying and sending the cards to charity. In addition, you can post your…

Meet the Medical Advisory Committee Members - Dr. Anthony Ordman

Medical News

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

A Message from the Editor

Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…

Logo for the headache academy.

First Ever Headache Academy

Medical News
Awareness Events

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.


Medical News
Awareness Events

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

Second Annual Cedars-Sinai Intracranial Hypotension Symposium

Medical News

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

A row of tractors.

Tractor Rally 2018

Fundraising Events

For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…

Leaker Profile - Denise Moore

Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…

A CSF Leaker's Survival Guide

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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