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Posted on 20 January 201917 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…
A Message from the Editor
Posted on 19 December 2018Welcome to the Winter edition of Leaker Life.Once again it has been a busy time for the CSF Leak Association, and you will see from our Business Plan that we intend to continue forging ahead in…
Leaker Profile - Pete Marnick
Posted on 01 December 2018Our Trustee tells his story of living with a CSF leak. You can read other stories on our patient experiences…
Christmas Cards 2018
Posted on 01 December 2018This year we have teamed up with DontSendMeACard.com so that you can send customised e-cards and donate the equivalent costs of buying and sending the cards to charity. In addition, you can post your…
Meet the Medical Advisory Committee Members - Dr. Anthony Ordman
Posted on 16 November 2018In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…
A Message from the Editor
Posted on 31 October 2018Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…
First Ever Headache Academy
Posted on 16 October 2018The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.
RAREfest
Posted on 16 October 2018It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…
Second Annual Cedars-Sinai Intracranial Hypotension Symposium
Posted on 01 October 2018The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.
Tractor Rally 2018
Posted on 22 September 2018For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…