We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish Parliament Building in Holyrood. Rare disease patients are invited to join politicians and other stakeholders in the rare disease community to mark Rare Disease Day 2020.

The speakers at the event were Liz Twist MP, Dr Jenny Harris the Deputy Chief Medical Officer for England, Amanda Brodie and Kristy Blakeborough-Wesson, both patients affected by a rare disease. After the talks we had the opportunity to engage with MPs, rare disease stakeholders and other members of our rare community.

Clare Sergeant

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