Claire's story

My husband Russell spent several years with an undiagnosed CSF Leak. In late 2018 he became severely unwell, and developed frontotemporal dementia. He was sleeping 18 hours a day, battling bad headaches, falling, choking, and losing his sense of smell and taste.

Luckily we were able to find a neurosurgeon who was able to successfully find and then repair his spinal leak. Since his recovery, we have both volunteered to support the CSF Leak Association.

This year, I will be proudly running the London Marathon to raise funds for the CSF Leak Association, so that it can continue to do fine work for sufferers, their carers and the broader medical community.

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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