Members
A new 12-week Support Group Programme for CSF Leak patients in the UK
Being diagnosed with a CSF Leak can be frightening, demanding, stressful and lonely.
‘Stronger Together’ provides a supportive, confidential space to share experiences, the ups and downs, and to feel less on your own with some of the unique demands of your particular circumstances.
The sessions will be facilitated by Zubyda Azzam, a specialist counsellor from Rareminds, and offer practical and emotional support for your wellbeing alongside the opportunity to create trusted bonds with other group members.
The sessions will run weekly on a Tuesday from 7:30 to 8:45pm (Zoom)
The first session will be Tuesday 16th September 2026
There will be a maximum of 12 participants, on a ‘first come, first served’ basis. Although we understand ‘life happens’, please be prepared to commit in principle to all 12 sessions in order to make the most of the experience.
Zubyda Azzam UKCP Accred is registered with the United Kingdom Council for Psychotherapy and has worked as a therapist in a variety of settings including the NHS, prisons, refugee camps, and residential therapeutic communities. She was also a volunteer with the Samaritans for over 10 years. She is particularly passionate about the therapeutic potential of groups for rare disease communities.
If you would like to find out more, do feel free to email Zubyda with your questions zubyda@rareminds.org
Register your interest in attending there support group here
Become a Member
Online Store
Donate
Volunteer