News

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…

Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF Leak Awareness. Thank also to everyone one braved the plummeting…

The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.

Hello and welcome to this special Christmas edition of our Leaker Life newsletter. As we approach the festive season and New Year beckons, it's customary to look back on the year that was and…

The 20th January 2018 will mark the inaugural meeting of our Medical Advisory Committee (MAC), where a number of medical professionals with an invested interest in CSF Leaks will come together at a…

Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…

by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Cerian Baldwin, a Trustee of the CSF Leak Association, was able to attend the symposium. Here she shares her experience of the day.

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…