News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


Leaker Profile - Robert Edwards

Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…

Scottish Kelpies lit up for Leak Week 2018

Awareness Events

Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF Leak Awareness. Thank also to everyone one braved the plummeting…

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Inaugural CSF Leak Association Medical Advisory Committee Meeting

Medical News
Association News

The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.

A Message from the Chairman

Hello and welcome to this special Christmas edition of our Leaker Life newsletter. As we approach the festive season and New Year beckons, it's customary to look back on the year that was and…

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Formation of the Medical Advisory Committee

Medical News
Association News

The 20th January 2018 will mark the inaugural meeting of our Medical Advisory Committee (MAC), where a number of medical professionals with an invested interest in CSF Leaks will come together at a…

A Message from the Editor

Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…

The Importance of Patience and Gentle Persistence

Medical News

by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.

Intracranial Hypotension Symposium 2017

Medical News
Awareness Events

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Cerian reports on the first Intracranial Hypotension Symposium

Medical News
Awareness Events

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Cerian Baldwin, a Trustee of the CSF Leak Association, was able to attend the symposium. Here she shares her experience of the day.

Leaker Profile - Suzanne Morgan

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…


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You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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