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Posted on 19 April 2016We’re delighted to announce that Kate Hubbard and Ray Michael are organising fundraising events for CSF Leaks. Kate and friends are doing a gruelling Tough Mudder to raise funds for the CSF Leak…

Interview with a fundraiser - Polly Walker
Posted on 28 February 2016On the evening of Tuesday 28th February, I caught the train into London and made my way to the Southbank where we were meeting for a briefing prior to the big event. Scott Bell, from UK Fire Walk and…
We’re now an official charity!
Posted on 05 February 2016We are delighted to announce that today marks the establishment of the UK’s first charity dedicated to cerebrospinal fluid (CSF) leaks. The Office of the Scottish Charity Regulator has approved our…
Patient bounces back to life following CSF repair surgery
Posted on 28 February 2014When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating…
Brain fluid leak mistaken for allergies
Posted on 04 December 2012A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak. Aundrea Aragon, 35, made several trips to her doctor over…
Real Life Trauma for Star of The Real Housewives of Orange County
Posted on 23 May 2011As I write this week’s blog, I am in my daughter Briana’s hospital room for the fourth day due to a CSF Leak (cerebral spinal fluid). My heart is filled with sadness, and the tears that roll down my…