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Posted on 25 August 2016On September 11th 2016, Frances Todd and Kate Hubbard (right and centre respectively in the photograph) will be taking on the unforgiving challenge of TOUGH MUDDER North West in order to raise much…
Hollyoaks' star suffers CSF Leak
Posted on 06 August 2016Duncan James, of UK pop band Blue and now popular TV soap Hollyoaks, talks about his recent struggles with a cerebrospinal fluid leak following surgery. He reveals how this terrifying illness almost…
Meet the trustees - Claire Hubbard
Posted on 01 June 2016Claire Hubbard is a trustee and became a Spontaneous Leaker in 2009. She was first diagnosed and treated in June 2014 and has been treated with multiple blood and fibrin glue patches in USA and at…
Meet the trustees - Sarah Mead
Posted on 01 June 2016Sarah Mead is one of the trustees of the charity. She is married with 3 children and lives in a market town near Cambridge. Sarah trained as a Botanical Illustrator and worked until illness made…
Meet the trustees - Pete Marnick
Posted on 01 June 2016Pete is a Flight Service Manager for Virgin Atlantic Airways, however has been unable to fulfil this role since the onset of his symptoms. Pete first experienced CSF related problems in 2009 after a…
Meet the trustees - David Baldwin
Posted on 01 June 2016David is a founding member and trustee of the CSF Leak Association, and currently serves as chairman. David is a Chartered Town Planner with over a decade of experience in the development industry.…
Meet the trustees - Cerian Baldwin
Posted on 01 June 2016Cerian Bladwin, the CSF Leak Association’s treasurer, has been supporting her husband, David, since the onset of his CSF leaks in June 2013. Through being part of David's journey, she has met other…
Meet the trustees - Deborah Ogg
Posted on 01 June 2016Deborah has spent most of her life working extensively in retail, from Saturday girl to store display design to flagship store manager. She’s passionate about art, crafts and design. Her great love…

Kilt Ride 2016 Success
Posted on 28 May 2016On Saturday 28th May 2016, some 100 tartan-clad bikers arrived on the banks of Loch Ness as part of a two-day 500-mile ride in support of the CSF Leak Association. Called ‘The Kilt Ride 2016’ the…
The Kilt Ride 2016
Posted on 20 May 2016The Kilt Ride 2016 is the world’s first ever large-scale awareness and fundraising event for cerebrospinal fluid (CSF) leaks.