News

We’re delighted to announce that Kate Hubbard and Ray Michael are organising fundraising events for CSF Leaks. Kate and friends are doing a gruelling Tough Mudder to raise funds for the CSF Leak…

On the evening of Tuesday 28th February, I caught the train into London and made my way to the Southbank where we were meeting for a briefing prior to the big event. Scott Bell, from UK Fire Walk and…

We are delighted to announce that today marks the establishment of the UK’s first charity dedicated to cerebrospinal fluid (CSF) leaks. The Office of the Scottish Charity Regulator has approved our…

When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating…

A mother-of-three is lucky to be alive after doctors failed to diagnose that the clear liquid streaming from her nose was a brain fluid leak. Aundrea Aragon, 35, made several trips to her doctor over…

As I write this week’s blog, I am in my daughter Briana’s hospital room for the fourth day due to a CSF Leak (cerebral spinal fluid). My heart is filled with sadness, and the tears that roll down my…