All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Interview with a fundraiser - Rachael Ebeling

Fundraising Events

I am a wife, mother of two and a full time primary school teacher. I was living a normal healthy life until my world came crashing down. After a nasty chesty cough I began to feel worse than I had…

A Message from the Chairman

Welcome to the second edition of ‘Leaker Life’, the quarterly e-newsletter published by the CSF Leak Association. We are a UK charity working to raise the profile of cerebrospinal fluid (CSF) leaks…

Interview with a fundraiser - Valerie McCluskie

Fundraising Events

On Sunday 25th September 2016, Valerie took part in the River Ness 10km run in order to raise money and awareness for the CSF Leak Association. Here she gives us an insight into the event, her…

Interview with a fundraiser - Kate Hubbard

Fundraising Events

On the 11th September Kate, Fran and friends took part in the Tough Mudder North West in a bid to raise vital funds for the CSF Leak Association. Here she tells us all about her experience... What…

A Message from the Chairman

Association News

Hello and welcome to the inaugural edition of ‘Leaker Life’, the e-newsletter published by the CSF Leak Association, a new UK charity working to raise the profile of cerebrospinal fluid (CSF) leaks…

Tough Mudder North West Update

Fundraising Events

On September 11th 2016, seven brave souls will be taking on the unforgiving challenge of the TOUGH MUDDER North West in order to raise much needed funds, awareness and support for the CSF Leak…

Meet the Trustees - Polly Walker

Association News

In September 2016, we welcomed Polly Walker to the CSF Leak Association Board. Polly is now one of the trustees of the charity, taking the total to seven. Her background is in education; originally…

Interview with a fundraiser - Jenny Pople

Fundraising Events

I had my first spinal CSF leak in 2012 and a second in 2015. During my first leak I was diagnosed really quickly but not offered any treatment and struggled to find good quality information about the…

Becky Hill's Blog

Awareness Events

There are handful of bloggers around the globe who write about their experiences of living with a CSF leaks. Becky Hill, a current leaker based in the UK, has been blogging about her life,…

Leaker Profile - Cameron Goodship

Cameron shares his inspiring story about life with a CSF leak. You can read about other patient stories on our patient experience's…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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