News

On the 11th September Kate, Fran and friends took part in the Tough Mudder North West in a bid to raise vital funds for the CSF Leak Association. Here she tells us all about her experience... What…

Hello and welcome to the inaugural edition of ‘Leaker Life’, the e-newsletter published by the CSF Leak Association, a new UK charity working to raise the profile of cerebrospinal fluid (CSF) leaks…

On September 11th 2016, seven brave souls will be taking on the unforgiving challenge of the TOUGH MUDDER North West in order to raise much needed funds, awareness and support for the CSF Leak…

I had my first spinal CSF leak in 2012 and a second in 2015. During my first leak I was diagnosed really quickly but not offered any treatment and struggled to find good quality information about the…

There are handful of bloggers around the globe who write about their experiences of living with a CSF leaks. Becky Hill, a current leaker based in the UK, has been blogging about her life,…

Cameron shares his inspiring story about life with a CSF leak. You can read about other patient stories on our patient experience's…

On September 11th 2016, Frances Todd and Kate Hubbard (right and centre respectively in the photograph) will be taking on the unforgiving challenge of TOUGH MUDDER North West in order to raise much…

Duncan James, of UK pop band Blue and now popular TV soap Hollyoaks, talks about his recent struggles with a cerebrospinal fluid leak following surgery. He reveals how this terrifying illness almost…

On Saturday 28th May 2016, some 100 tartan-clad bikers arrived on the banks of Loch Ness as part of a two-day 500-mile ride in support of the CSF Leak Association. Called ‘The Kilt Ride 2016’ the…

The Kilt Ride 2016 is the world’s first ever large-scale awareness and fundraising event for cerebrospinal fluid (CSF) leaks.