News

We held our inaugural AGM on the 2 May 2017. It was a good opportunity to look back over the past 14 months and see how much we have achieved. Despite all, bar one, of our Trustees having a CSF Leak themselves, we’ve done a lot.

Welcome to the fourth edition of Leaker Life. Since our last edition, many exciting developments have been taking place for the association. The first quarter of 2017 saw the very first Spinal CSF…

Following the success of the inaugural Kilt Ride in 2016, this year's event, organised by Ray Michael (aka 'The Scotorian Biker'), promises to be bigger and better this year! As many of you may…

The end of February saw the launch of the first ever ‘Leak Week’, a week dedicated to raising awareness of spinal cerebrospinal fluid leaks, running from 26^th Feb to 4^th March, 2017.

This is part 1 in a 3 part series summarising the three live Q & A sessions which took place during Leak Week, involving three of the world’s leading specialists in CSF Leaks.We wish to express…

Chris shares the story of his CSF leak journey. You can read more patient stories on our patient experience's…

Welcome to the third edition of Leaker Life. In this edition, aside from being jam-packed with articles and information, we are thrilled to announce that we will be opening for membership in January…

Ingrid shares her story about life with a CSF leak. You can read about more patient stories on our patient experience's…

Sarah Mead talks about her experience of travelling to Germany for treatment in 2015.

Our Trustee, Sarah Mead, talks to Dr Robert Marchbanks about non-invasive intracranial pressure monitoring.