News

We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…

Welcome to the 5th edition of Leaker Life. In this edition we are excited to feature the outcomes of our first AGM. Reflecting on our first year and how much has been achieved in such a short space…

This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.

Donia shares her story about life with a CSF Leak. You can read more about other patient stories on our patient's experiences pages. Donia's Vlogs are fantastic - a really creative and engaging way…

Following the huge success of The Kilt Ride 2016, the event took place again from 26th - 29th May this year, and once again it was not only a sight to behold, but a fantastic opportunity for the…

The Intracranial Hypotension Symposium to be held on October 14, 2017 will be hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation.

In the fourth edition of Leaker Life we featured the first of three live Q & A sessions with the worlds leading CSF leak specialists. In this edition, we summarise the session with Dr Carroll.

We held our inaugural AGM on the 2 May 2017. It was a good opportunity to look back over the past 14 months and see how much we have achieved. Despite all, bar one, of our Trustees having a CSF Leak themselves, we’ve done a lot.

Welcome to the fourth edition of Leaker Life. Since our last edition, many exciting developments have been taking place for the association. The first quarter of 2017 saw the very first Spinal CSF…