All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

Prime Four Beast Race

Fundraising Events

We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…

A Message from our Trustee Claire Hubbard

Welcome to the 5th edition of Leaker Life. In this edition we are excited to feature the outcomes of our first AGM. Reflecting on our first year and how much has been achieved in such a short space…

Banner advertising Leak Week 2017.

Q&A with Dr Wouter Schievink

Medical News

This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.

Article Featured in Fragile Links Magazine

Medical News
Leaks in the News

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.

Leaker Profile - Donia Wheelan

Donia shares her story about life with a CSF Leak. You can read more about other patient stories on our patient's experiences pages. Donia's Vlogs are fantastic - a really creative and engaging way…

A Kilt Ride shirt, a group of people, and landscape photos.

Kilt Ride 2017

Fundraising Events

Following the huge success of The Kilt Ride 2016, the event took place again from 26th - 29th May this year, and once again it was not only a sight to behold, but a fantastic opportunity for the…

Intracranial Hypotension Symposium Announcement

Medical News

The Intracranial Hypotension Symposium to be held on October 14, 2017 will be hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation.

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Q&A with Dr Ian Carroll - Anaesthetist

Medical News

In the fourth edition of Leaker Life we featured the first of three live Q & A sessions with the worlds leading CSF leak specialists. In this edition, we summarise the session with Dr Carroll.


CSF Leak Association AGM 2017

We held our inaugural AGM on the 2 May 2017. It was a good opportunity to look back over the past 14 months and see how much we have achieved. Despite all, bar one, of our Trustees having a CSF Leak themselves, we’ve done a lot.

A Message from the Editor

Welcome to the fourth edition of Leaker Life. Since our last edition, many exciting developments have been taking place for the association. The first quarter of 2017 saw the very first Spinal CSF…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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