News

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…

CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…

On 23rd September, veteran rally organiser, Neil MacDonald of Strathpeffer, rallied local tractor enthusiasts to join him for this event, in aid of the CSF Leak Association. 24 tractors took part in…

We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…

Welcome to the 5th edition of Leaker Life. In this edition we are excited to feature the outcomes of our first AGM. Reflecting on our first year and how much has been achieved in such a short space…

This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.

Donia shares her story about life with a CSF Leak. You can read more about other patient stories on our patient's experiences pages. Donia's Vlogs are fantastic - a really creative and engaging way…

Following the huge success of The Kilt Ride 2016, the event took place again from 26th - 29th May this year, and once again it was not only a sight to behold, but a fantastic opportunity for the…

The Intracranial Hypotension Symposium to be held on October 14, 2017 will be hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation.