Newsletters

Issue 14 - Spring 2020

An Update from the Board of Trustees

With Covid-19 presenting a huge challenge for people across the globe and understandably dominating much of our health services’ resources, we are acutely aware of the significant, and in many cases…

Message from the Editor

Welcome to the Spring 2020 edition of Leaker Life. As the new Editor of our e-newsletter, let me briefly introduce myself. I’m a former Leaker, who was very unwell, and fortunate to have been…

Spotlight on a volunteer banner

Spotlight on a Volunteer - Claire Secker

Association News

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

Rare Disease Day 2020

Awareness Events

We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…

Intracranial Hypotension Symposium 2020

Medical News
Awareness Events

Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.

Headache Academy 2019

Awareness Events

The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

Become a MemberOnline StoreDonateVolunteer