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Posted on 07 May 2019A huge thank you from us all at the CSF Leak Association to Claire Comley, who shares her cranial leak story in this edition of Leaker Life. You can also read about other patient experiences on our…
When to suspect a CSF Leak
Posted on 29 March 2019The Australian Doctor Magazine in March 2019
BASH 8th Biennial National Meeting on Headache
Posted on 20 January 201917 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…
Meet the Medical Advisory Committee Members - Dr. Anthony Ordman
Posted on 16 November 2018In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…
First Ever Headache Academy
Posted on 16 October 2018The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.
RAREfest
Posted on 16 October 2018It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…
Second Annual Cedars-Sinai Intracranial Hypotension Symposium
Posted on 01 October 2018The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.
CSF Leak Week UK 2018
Posted on 16 March 2018Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!
Meet the Medical Advisory Committee Members - Dr James Walken
Posted on 08 March 2018Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…
Rare Disease Day 2018, Scottish Parliamentary Reception
Posted on 01 March 2018By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…