News

The Australian Doctor Magazine in March 2019

17 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13^th-14^th October 2018 at the Royal College of Physicians in London.

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

Our first UK based awareness week ran from the 26^th February – 4th March 2018, and what a week it was!

Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.