Association News

Spotlight on Trustees

Association News

Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…

Patient Impact Survey Report 2020

Association News

The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…

Changes to the Board of Trustees

Association News

Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…

Annual General Meeting 2020

Association News

The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…

CSF Leak Medical Accommodations Card

Association News

The Medical Accommodations Card helps others to understand your condition.

Spotlight on a volunteer banner

Spotlight on a Volunteer - Claire Secker

Association News

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

COVID-19 Information for CSF Leak Sufferers

Association News

This page will be kept under review and amended if/when government or expert guidance is updated.

Last updated: 24 March 2020.

2020 London Marathon

Fundraising Events
Association News

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

A Message from the Trustees

Association News

Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…

A Message from the Outgoing Chairman

Association News

The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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