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Patient Impact Survey Report 2020Posted on 31 December 2020
The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…
Changes to the Board of TrusteesPosted on 19 November 2020
Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…
Annual General Meeting 2020Posted on 09 November 2020
The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…
CSF Leak Medical Accommodations CardPosted on 04 June 2020
The Medical Accommodations Card helps others to understand your condition.
Spotlight on a Volunteer - Claire SeckerPosted on 01 April 2020
Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak SufferersPosted on 20 March 2020
This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
2020 London MarathonPosted on 27 November 2019
When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.
A Message from the TrusteesPosted on 17 October 2019
Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…
A Message from the Outgoing ChairmanPosted on 17 October 2019
The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…
A further message from Dr. Susan IacovouPosted on 17 October 2019
At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…