News

Our website actually pre-dates the charity itself. It was initially developed as an information source by former chair David Baldwin back in early 2014. It was (and remains) a popular site and became…

Since the founding of the charity, it has been run solely by volunteers. We are extremely grateful to everyone who has helped over the years. You have enabled the charity to get up and running to…

The report for our recent Patient Impact Survey 2020 is now available. We’d like to extend our thanks and gratitude to everyone who took the time to respond to the initial survey. The results will…

Following the CSF Leak Association’s 2019/2020 AGM tonight, we can confirm that the new charity trustees are as follows: Clare Joy (Chair)Tamsin Trevarthen (Secretary)Cerian Baldwin…

The charity’s Annual General Meeting (AGM) will take place at 7pm on 19 November 2020. All of our members are eligible to attend. Members may join the meeting as a tele-/videoconference using Skype…

The Medical Accommodations Card helps others to understand your condition.

Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.

This page will be kept under review and amended if/when government or expert guidance is updated.

Last updated: 24 March 2020.

When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.

At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…