Issue 8 - Spring 2018
News CategoriesAll news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life Newsletter
A Message from the TrusteesPosted on 16 March 2018
Welcome to the Spring 2018 edition of Leaker Life. In this edition we welcome our new Trustee, Tamsin Trevarthen, who we are really excited to be working with.We take a look back over Leak Week 2018…
CSF Leak Week UK 2018Posted on 16 March 2018
Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!
Rare Disease Day 2018, Scottish Parliamentary ReceptionPosted on 01 March 2018
By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…
Leaker Profile - Robert EdwardsPosted on 27 February 2018
Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…
Scottish Kelpies lit up for Leak Week 2018Posted on 27 February 2018
Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF Leak Awareness. Thank also to everyone one braved the plummeting…
Inaugural CSF Leak Association Medical Advisory Committee MeetingPosted on 23 January 2018
The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.