Issue 10 - Autumn 2018
News Categories
All news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life NewsletterRAREfest
Posted on 16 October 2018It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…
Second Annual Cedars-Sinai Intracranial Hypotension Symposium
Posted on 01 October 2018The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.
A CSF Leaker's Survival Guide
Posted on 31 August 2018Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.