Newsletters

Issue 10 - Autumn 2018

A Message from the Editor

Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…

RAREfest

Medical News
Awareness Events

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

Second Annual Cedars-Sinai Intracranial Hypotension Symposium

Medical News

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

Tractor Rally 2018

Fundraising Events

For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…

Leaker Profile - Denise Moore

Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…

A CSF Leaker's Survival Guide

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.

2018 CSF Leak Association AGM

Association News

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.

Prime Four Beast Race

Fundraising Events

We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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