Issue 10 - Autumn 2018
News CategoriesAll news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life Newsletter
A Message from the EditorPosted on 31 October 2018
Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…
RAREfestPosted on 16 October 2018
It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…
Second Annual Cedars-Sinai Intracranial Hypotension SymposiumPosted on 01 October 2018
The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.
Tractor Rally 2018Posted on 22 September 2018
For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…
Leaker Profile - Denise MoorePosted on 01 September 2018
Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…
A CSF Leaker's Survival GuidePosted on 31 August 2018
Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.
2018 CSF Leak Association AGMPosted on 16 August 2018
This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.
Prime Four Beast RacePosted on 01 September 2017
We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…