Newsletters

Issue 1 - Summer 2016

A Message from the Chairman

Association News

Hello and welcome to the inaugural edition of ‘Leaker Life’, the e-newsletter published by the CSF Leak Association, a new UK charity working to raise the profile of cerebrospinal fluid (CSF) leaks…

Tough Mudder North West Update

Fundraising Events

On September 11th 2016, seven brave souls will be taking on the unforgiving challenge of the TOUGH MUDDER North West in order to raise much needed funds, awareness and support for the CSF Leak…

Tough Mudder North West

Fundraising Events

On September 11th 2016, Frances Todd and Kate Hubbard (right and centre respectively in the photograph) will be taking on the unforgiving challenge of TOUGH MUDDER North West in order to raise much…

Meet the trustees - Sarah Mead

Association News

Sarah Mead is one of the trustees of the charity. She is married with 3 children and lives in a market town near Cambridge. Sarah trained as a Botanical Illustrator and worked until illness made…

Meet the trustees - Pete Marnick

Association News

Pete is a Flight Service Manager for Virgin Atlantic Airways, however has been unable to fulfil this role since the onset of his symptoms. Pete first experienced CSF related problems in 2009 after a…

Meet the trustees - Claire Hubbard

Association News

Claire Hubbard is a trustee and became a Spontaneous Leaker in 2009. She was first diagnosed and treated in June 2014 and has been treated with multiple blood and fibrin glue patches in USA and at…

Meet the trustees - Deborah Ogg

Association News

Deborah has spent most of her life working extensively in retail, from Saturday girl to store display design to flagship store manager. She’s passionate about art, crafts and design. Her great love…

Meet the trustees - David Baldwin

Association News

David is a founding member and trustee of the CSF Leak Association, and currently serves as chairman. David is a Chartered Town Planner with over a decade of experience in the development industry.…

Meet the trustees - Cerian Baldwin

Association News

Cerian Bladwin, the CSF Leak Association’s treasurer, has been supporting her husband, David, since the onset of his CSF leaks in June 2013. Through being part of David's journey, she has met other…

Kilt Ride 2016 Success

Fundraising Events

On Saturday 28th May 2016, some 100 tartan-clad bikers arrived on the banks of Loch Ness as part of a two-day 500-mile ride in support of the CSF Leak Association. Called ‘The Kilt Ride 2016’ the…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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