Newsletters

Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…

by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…

CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…

On 23rd September, veteran rally organiser, Neil MacDonald of Strathpeffer, rallied local tractor enthusiasts to join him for this event, in aid of the CSF Leak Association. 24 tractors took part in…

This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.