Issue 6 - Autumn 2017
News CategoriesAll news Medical News Fundraising Events Awareness Events Leaks in the News Association News See latest and archiveLeaker Life Newsletter
A Message from the EditorPosted on 01 November 2017
Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…
The Importance of Patience and Gentle PersistencePosted on 01 November 2017
by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.
Intracranial Hypotension Symposium 2017Posted on 16 October 2017
The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.
Meet the trustees - Clare JoyPosted on 01 October 2017
We would like to extend a very warm welcome to our newest Trustee, Clare Joy. Clare has lived with a hypermobility syndrome and POTS for many years before becoming a spontaneous leaker in October…
Leaker Profile - Suzanne MorganPosted on 30 September 2017
Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…
CSF leaks hit the NewsPosted on 30 September 2017
CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…
Tractor Rally 2017Posted on 23 September 2017
On 23rd September, veteran rally organiser, Neil MacDonald of Strathpeffer, rallied local tractor enthusiasts to join him for this event, in aid of the CSF Leak Association. 24 tractors took part in…
Q&A with Dr Wouter SchievinkPosted on 01 June 2017
This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.
Article Featured in Fragile Links MagazinePosted on 01 June 2017
We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.