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The CSF Leak Association was excited to work with medical professionals and patients across the UK, who have experience in SIH/spinal CSF leaks to deliver the first consensus guideline for spontaneous intracranial hypotension (SIH).
The CSF Leak Association feel strongly that there needs to be a consistent pathway for patients with SIH, so that every patient gets the best possible treatment at the earliest opportunity. It has been luck and location which has determined the possible investigation, treatment and management patients may receive when they present with a SIH/spinal CSF leak.
The aim was to create a multidisciplinary consensus clinical guideline for best practice in the diagnosis, investigation and management of spontaneous intracranial hypotension (SIH) due to cerebrospinal fluid leak based on current evidence and consensus from a multidisciplinary specialist interest group (SIG).
A 29-member SIG was established, with members from neurology, neuroradiology, anaesthetics, neurosurgery and patient representatives, and for more than two years, they worked with patients and the CSF Leak Association to deliver this much needed guideline.
This guideline was first published in the Journal of Neurology, Neurosurgery and Psychiatry, May 2023
The SIH Guidelines 2023 are open access. They can be read, downloaded and printed free of charge and with no subscription
Additional materials are included
54 pages in total
Guideline Infographics
Clinician Facing
Patient Facing
These resources were developed free-of-charge on a pro bono basis by Costello Medical, UK.
- Costello Medical provides scientific support to the healthcare industry in the analysis, interpretation and communication of clinical and health economic data. Costello Medical are proud to deliver projects free-of-charge on a pro bono basis, which allows us to give back by sharing our expertise to charities and non-profits. To find out more about our pro bono work please visit their website.
Practical Neurology Podcast
Below is an episode of the Practical Neurology Podcast which is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache.
Key members of the special interest group who wrote this guideline, Prof Manjit Matharu, Dr Indran Davagnanam and Mr Parag Syal, discuss key elements with Amy Ross-Russell, making it clear to practitioners what needs to be done to diagnose and treat spinal CSF leak and CSF venous fistula.
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