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The CSF Leak Association was proud to work with medical professionals and patients across the UK, who have experience in SIH and spinal CSF leaks to deliver the first multidisciplinary consensus guideline for spontaneous intracranial hypotension (SIH) due to spinal CSF leak.
First published in the Journal of Neurology, Neurosurgery & Psychiatry in May 2023. Available to everyone as open access; they can be read, downloaded and printed free of charge without a subscription.
Whether you’re a healthcare professional seeking authoritative guidance or someone wanting to understand SIH or Spinal CSF leak more clearly, this guideline provides an invaluable, carefully constructed overview of current best practice.
This comprehensive, expert-developed CSF leak guide is designed to support clinicians, patients and carers in understanding the best evidence-based approaches to diagnosing and managing SIH and spinal CSF leaks. Additional materials are included, there are 54 pages in total.
Guideline Infographics
Clinician Facing
This infographic is a summary of the full published Multidisciplinary Consensus Guideline for the Diagnosis and Management of Spontaneous Intracranial Hypotension designed as an easy reference guide for clinicians.
- Clinician Infographic Size A3 Download
- Clinician Infographic Size A4 Page 1 Download
- Clinician Infographic Size A4 Page 2 Download
These resources were developed free-of-charge on a pro bono basis by Costello Medical, UK.
- Costello Medical provides scientific support to the healthcare industry in the analysis, interpretation and communication of clinical and health economic data. Costello Medical are proud to deliver projects free-of-charge on a pro bono basis, which allows us to give back by sharing our expertise to charities and non-profits. To find out more about their pro bono work please visit their website.
Patient Facing
This infographic is a summary of the full published Multidisciplinary Consensus Guideline for the Diagnosis and Management of Spontaneous Intracranial Hypotension designed as an easy reference guide for patients and caregivers.
- Patient Infographic Size A3 Download
- Patient Infographic Size A4 Page 1 Download
Patient Infographic Size A4 Page 2 Download
These resources were developed free-of-charge on a pro bono basis by Costello Medical, UK.
- Costello Medical provides scientific support to the healthcare industry in the analysis, interpretation and communication of clinical and health economic data. Costello Medical are proud to deliver projects free-of-charge on a pro bono basis, which allows us to give back by sharing our expertise to charities and non-profits. To find out more about their pro bono work please visit their website.
The CSF Leak Association feel strongly that there needs to be a consistent pathway for patients with SIH, so that every patient gets the best possible treatment at the earliest opportunity. It has been luck and location which has determined the possible investigation, treatment and management patients may receive when they present with a SIH caused by spinal CSF leak.
The aim was to create a multidisciplinary consensus clinical guideline for best practice in the diagnosis, investigation and management of spontaneous intracranial hypotension (SIH) due to cerebrospinal fluid leak based on current evidence and consensus from a multidisciplinary specialist interest group (SIG).
A 29-member SIG was established, with members from neurology, neuroradiology, anaesthetics, neurosurgery and patient representatives, and for more than two years, they worked with patients and the CSF Leak Association to deliver this much needed guideline.
Practical Neurology Podcast
Below is an episode of the Practical Neurology Podcast which is essential listening for all parties with an interest in CSF leak, CSF dynamics, and headache.
Key members of the special interest group who wrote this guideline, Prof Manjit Matharu, Dr Indran Davagnanam and Mr Parag Syal, discuss key elements with Amy Ross-Russell, making it clear to practitioners what needs to be done to diagnose and treat spinal CSF leak and CSF venous fistula.
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