Shine a Light on CSF Leaks

Light Up a Landmark for CSF Leak Week  

1-7 June 2026

Be part of something beautiful this Leak Week 💙

Every year during CSF Leak Week, incredible buildings and landmarks across the UK light up in blue as a public show of solidarity with everyone affected by a CSF leak and to spark conversations. This year, we’re inviting you to be part of this growing wave of awareness.

Help us light up even more of the UK

If you have a landmark in your town or city, you can help by writing to them and asking if they’ll light up blue for Leak Week. A simple message from a local resident can make all the difference and we’ve created an easy email template to make it effortless.

When a landmark agrees to take part, please let us know by emailing events@csfleak.uk so we can proudly add it to this year’s list.

Share your photos 

If a landmark near you is taking part, and you’re able to visit (or have someone who can go on your behalf), we’d love to share your photos. These images help us show the world that the CSF leak community is here - united and deserving of better understanding and care. Send your photos to events@csfleak.uk and we’ll share them with the world. Alternatively post them on your social media with the hashtag: #csfleakweek

Every photo tells a story.

Every blue light sparks a conversation.

Every conversation brings someone closer to understanding, recognition, and care.

Thank you for helping to raise awareness.

Together, we can turn blue lights into real change. 💙

Ask Your Local Landmark to Light Up for Leak Week 

Email Template: 

Subject: Request to light up blue for CSF Leak Week (1–7 June)

Dear [Name/ Landmark name Team],

I am writing as a local resident and as [someone who has been personally affected by a CSF leak / someone who loves / supports a person affected by a CSF leak]. CSF leaks are disabling, under‑diagnosed, and life‑altering, yet still largely invisible to the public.

Each year, during Leak Week (1–7 June), landmarks across the UK light up in blue to raise awareness of CSF leaks, a condition that is treatable but frequently misdiagnosed, leaving people without the care they need. These light-ups mean a great deal to our community; they spark conversations, bring visibility and help people finally recognise symptoms they may have struggled with for years, guiding them toward answers, support and appropriate treatment.

I am kindly asking whether [Landmark/Building Name] would consider lighting up blue on any day between 1–7 June (preferred day 3 June) to support this important campaign.

Details:
• Dates: Any day from 1–7 June (3 June preferred)
• Colour: Blue (#3C7DDB preferred)
• Cause: Leak Week – CSF Leak Awareness
• Charity: CSF Leak Association (Registered Charity No. SC046319)
• Website: csfleak.uk

Thank you for considering this request. A light-up in our area would mean so much not only to me, but to everyone affected by CSF leaks who rarely see their condition recognised publicly.

With best wishes,

[Your Name]
[Your Area/Postcode]