Our patient representative represents our membership and patients within the organisation and, in particular, on the Medical Advisory Committee. They are usually appointed for a set term at our Annual General Meeting and anyone within the membership of the CSF Leak Association may apply, after which their application will be considered by the Board who make appointments. The patient representative will normally be a current or former CSF leak sufferer. They are not members of the Board of Trustees and do not have a formal decision-making role within the charity but instead provide an independent voice for patients and our members. Read about our current patient representative on our Trustees and Governance page. If you would be interested in this role please fill out the form below.
All information submitted will be processed and managed in accordance with the GDPR and our data protection policy.