UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and those who provided feedback. We will now be considering all responses to the consultation as we prepare the final version of the guidelines.

The CSF Leak Association and Dr Manjit Matharu (Associate Professor and Honorary Consultant Neurologist, UCL & UCLH) invite stakeholders to comment on the draft guideline for the diagnosis and management of Spontaneous Intracranial Hypotension (SIH) secondary to spinal CSF leak. The guideline is the culmination of nearly two years' work which saw the formation of a multidisciplinary special interest group. The group was set up with the aim of increasing awareness of SIH among healthcare professionals, improving diagnostic accuracy and promoting the use of effective investigations and treatments. It is our dearest hope that adoption of the guideline will result in tangible patient benefit. Five patients joined the group and attended all meetings ensuring the patient's voice was heard throughout.

When reading the document please bear in mind that it is aimed at a wide audience including neurologists, radiologists, neurosurgeons, anaesthetists, pain specialists, emergency medicine specialists, general practitioners, physicians, and other healthcare professionals who are involved in the care of patients with SIH. It is not specifically aimed at patients so at times the language is quite technical.
Please complete the form below to receive an email with a link to the draft guideline. Instructions on how to provide feedback will be provided in the same email. We aim to complete all requests within 48 hours.

We look forward to receiving your *feedback before the deadline of 5pm Sunday 24th July 2022.

*If you have no comments to make, please remember to submit "no comments" on the feedback form.

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