The Importance of Patience and Gentle Persistence

Lisa Jamieson began her career working in community pharmacy before moving into medicines management and then NHS planned care service redesign. She set up her own healthcare consultancy business while studying for an MSc in Nutritional Medicine. In 2014, after developing a spontaneous cerebrospinal fluid leak, Lisa was subsequently diagnosed with hypermobile Ehlers-Danlos Syndrome. With a lack of published evidence to guide her, Lisa tried to figure out for herself how she might improve her health. She decided to experiment with her diet and nutrition, which had unexpected positive consequences.

In her talk at the Genetic Disorders UK Leadership Symposium in Spring 2017, entitled "The importance of patience and gentle persistence", which you can listen to by clicking the link below. Lisa talks about how her sudden illness led to her discovering a new way of managing the symptoms of her hypermobile Ehlers Danlos syndrome (hEDS). Lisa now works as a part-time research fellow at The Wingate Institute for Neurogastroenterology and at The Royal London Hospital, where she is studying the impact of dietary changes on other patients with hypermobile Ehlers-Danlos syndrome.

Listen to Lisa's Presentation Here