Better Outcomes.

Initiated by the US Spinal CSF Leak Foundation, the campaign was dedicated to spreading the word about what a CSF Leak is, and to clearly highlight the associated symptoms in order to aid diagnosis. As we all know:

Diagnosis >> Treatment >> Better Outcomes.

To coincide with Leak Week, we launched our very own infographic which can be downloaded here and printed out on A4.

During Leak Week, much coverage was given to the painful and debilitating positional headache that tends to accompany CSF Leaks, which is now also considered an important and under diagnosed cause of new daily persistent headache. It is both treatable and curable, along with the many other neurological symptoms and complications that can be entirely debilitating due to the patient’s limited ability to be functional whilst upright. Click here to view the Spinal CSF Leak Foundation's fantastic new video animation that was launched and shared over and over again on social media, featuring Anna, a 'leaker' who explains clearly what a CSF Leak is.

Three live expert Q and A sessions also took place, as well as sponsored events, and a number of prominent landmarks shone purple across north America. In addition, the Spinal CSF Leak Foundation and the CSF Association joined forces across the globe in a colourful social media campaign, asking supporters to draw or paint blue (representing the CSF Association) and purple droplets (representing the Spinal CSF Leak Foundation) on their hands, arms or face, to photograph it and share on social media using the hashtag #LeakWeek to spread the message. Other hashtags regularly highlighted the cause too #CSFleak #cerebrospinalfluidleak #uprightheadache

Support Us

If you missed the 2017 Leak Week, don’t worry! There are still plenty of ways that you can spread the word and support the work we do:

  • Help to raise awareness – tell people about CSF Leaks, hand out leaflets, display your window sticker, wear your wristband, share your story, share our story, use social media, write a blog.
  • Become a member
  • Make a donation to support our work
  • Share our link
  • Share the video animation
  • Organise a fundraising event
  • Support us when you shop online
  • Shop for CSF Leak Association merchandise here and proudly show it off
  • If you're interested in working with us, we'd love to hear from you.

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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