Members
Other Charities, Medical Centres & Support Groups
We’ve pulled together a selection of other charities, medical centres and support groups that we think may be of use to anyone interested in CSF Leaks and Intracranial Hypotension.
They’re not our webpages, so we don’t control the content and including a link does not mean that we automatically agree with any or all opinions expressed on the associated website.
Charities (Elsewhere)
Spinal CSF Leak Canada A charity for spinal CSF leaks established in 2019
Spinal CSF Leak Foundation The USA’s spinal CSF leak charity.
Spinal CSF leak Australia The Australian spinal CSF leak charity.
Asociación AHIFUGA (Asociación de Hipotensión Intracraneal y Fugas de LCR – Spain)
AHIFUGA is The Spanish spinal and cranial CSF leak charity.
CSF Leak Website - France
Les Ébréché(e)s is the French platform to inform the public, patients & healthcare professionnals about CSF leaks.
Created by a patient, it covers educational information as well as testimonies and a directory of Expert centres treating CSF leaks in France.
Charities (UK & Ireland)
Aspire – Supporting people with spinal injury
IIH UK / Idiopathic Intracranial Hypertension UK
Counselling & Support
CSF Leak / Intracranial Hypotension Resources
Cedars-Sinai Medical Center CSF Leak Pages
Claire Hubbard's Blog – My life with Intracranial Hypotension
Les Ébréché(e)s is the French platform to inform the public, patients & healthcare professionnals about CSF leaks.
Created by a patient, it covers educationnal information aswell as testimonies and a directory of Expert centers treating CSF leaks in France.
Educational Presentation: Intracranial Hypotension
Johns Hopkins Medicine – What are CSF Leaks?
Medicine Plus – What is a CSF Leak?
Mont Sinai Hospital – CSF Leak
The Management of Cranial and Spinal CSF Leaks
CSF Leak Organisations
Doctors with CSF Leak Experience (UK & Ireland)
Doctors with CSF Leak Experience (USA)
Medical Journals & Research
Cerebrospinal Fluid Leak Imaging
Chiari Malformation & Syringomyelia Foundation Research
High-Resolution Single-Slice MR Myelography
Journal of American Medical Association (JAMA)
Miscellaneous
British Society of Neuroradiologists
Headache Specialists in the UK
Health Improvement Scotland – Stepped care for functional neurological symptoms
The Neurological Alliance of Scotland
Online Communities for CSF Leak / Intracranial Hypotension
Canadian CSF Leak Support Group
CSF Leaks (Cerebrospinal Fluid Leak) & IH – Facebook Open Group
CSF Leaks (Cerebrospinal Fluid Leak) & IH – Facebook Private Group
CSF Leaks (UK & Others) – Facebook Open Group
Inspire Spinal CSF Leak Community
Related Medical Conditions & Resources
Cerebrospinal fluid rhinorrhoea
IIH UK / Idiopathic Intracranial Hypertension UK
Intercranial Hypertension Research Foundation
Therapies & Relaxation for Leakers
Craniosacral Therapy Association (UK)
UK NHS Hospitals (with CSF Leak Experience)
National Hospital for Neurology and Neurosurgery, London
Salford Royal Hospital, Manchester
Southern General Hospital, Glasgow
University Hospital of North Staffordshire
USA Hospitals (with CSF Leak Experience)
Last reviewed: 2021
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