New Documentary Hidden Stream: The Untold Story of a CSF Leak

This documentary follows Dr. Bern Hard’s journey through a spinal CSF leak, a debilitating yet treatable condition that remains widely under-recognised. Through personal experience and expert insight, the film exposes the urgent need for earlier diagnosis, equitable access to care, and full implementation of the UK consensus guidelines for SIH. Spinal CSF leaks cause Spontaneous Intracranial Hypotension (SIH) which is the medical term for low intracranial pressure (pressure inside the skull).

Why This Matters

Spinal CSF leak (SIH) must be treated as a medical emergency, not a rare curiosity. 

Every region needs:

1. Education so orthostatic headache is recognised as a red flag for SIH.

2. MRI with contrast within two weeks of suspected SIH.

3. Local access to high-volume blood patching for effective treatment.

4. Specialist centres for those who need advanced care.

5. An SIH patient registry to drive research and improve outcomes.

Early diagnosis and treatment saves patients from years of suffering and disability whilst also saving health and social care services money.

We’re on a mission to raise awareness and drive change.

Thank you for being part of this journey!