Cerian and Calum Run for CSF Leakers

Help Cerian and Calum raise as much as possible and give them some encouragement to keep them on track to the finish line!

You can DONATE HERE via their JustGiving page.
 

Cerian and Calum's fundraising page on Just Giving

Cerian and Calum's Story

On 8th March 2026 Calum and his mum, Cerian, are taking on the Inverness 5K to raise vital funds for the CSF Leak Association. Calum’s dad, David, founded the charity, and Cerian a founding trustee worked tirelessly to support the CSF leak community. Now they’re running for every patient still affected.

Suffering from a rare disease is isolating and exhausting. We need more research to provide a stronger evidence base to be able to advocate to Healthcare providers and government to provide the best care to all leakers.

A step towards this is to set up a patient registry, where one day every patients journey is counted, and outcomes are evaluated.

Building a registry takes long term commitment from a team of experts. We as a patient community can all play a part in this journey by raising the required funds to support this project.

Anything that you can do to support this mission will be hugely valuable. We are a small but determined community, and together we are stronger.

Cerian and Calum's fundraising page on Just Giving