Sarah Mead - Trustee

Sarah Mead is one of the trustees of the charity. She is married with 3 children and lives in a market town near Cambridge. Sarah trained as a Botanical Illustrator and worked until illness made this no longer possible. Sarah is also a CSF Leak sufferer and her leak started spontaneously in January 2010. She has been treated at the National Hospital for Neurology & Neurosurgery (London), The Royal Stoke University Hospital and The University Medical Centre Freiburg (Germany). Sarah’s final treatment in Germany (in September 2015) appears to have solved her low pressure problem, but she is now being treated for rebound high pressure issues. Sarah, like many leakers, has also been diagnosed with Ehlers Danlos III (an inter-connective tissue disorder), Temporomandibular Joint Disorder, Postural Orthostatic Tachycardia Syndrome and Hypothyroidism. When she is able, Sarah runs a small design company from home and is also a classically trained singer.

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